Video -- "This is Lupus"

Video produced by the Lupus Foundation of  America, Inc..  Watching this Father, Joe McMullin, share his story about his daughter Kassie makes me cry every time I watch this video.  This disease still makes NO sense to me and we need the United States government to step up here!

Thank you to Dr. Susan Manzi, M.D. for pointing out exactly how all of us Lupies think and feel..........

• Lupus causes exceedingly high rates of heart attack and stroke.
• We fear disability
• We fear losing our jobs
• We fear the ability to have a child.
• If we do have that blessing, can we be an effective parent?  The disease makes us so sick, we are unreliable.
• We fear being a good spouse because Lupus is such a highly unpredictable disease.
• Every day, we fear Death............

We have to change this! We have to talk about it.  We absolutely have to Petition our congressmen. And we need our federal government to say that this disease has to get just as much attention as other devastating and potentially fatal diseases.
We need more research dollars, more physicians and more scientists thinking about Lupus and working on the cure. NOW.